InfoSAGE: Enhancing Communication, Coordination, and Collaboration in Elder Care
Aging creates health care decision-making, information management, and communication challenges for older adults and their families. When family members and other informal caretakers take a more active role in an elder’s care and decision-making, it can be exceptionally challenging for them to manage the elder’s health care information while respecting the elder’s preferences and priorities.
InfoSAGE (Information Sharing Across Generations) is a federally funded research project that aims to study the information needs of elders and their adult children who are involved in their care by building a “living laboratory”. InfoSAGE allows us to study real-life situations of elders and the challenges that families face in communicating, coordinating, and collaborating with complex and costly care environments.
The research team from BIDMC in collaboration with investigators at Hebrew SeniorLife, have developed a web-based platform to facilitate information search and retrieval, communication, and task management – all built around an aging adult (called the “Keystone”). To date, the InfoSAGE team have mapped information needs and explored governance of personal health information with family caregivers.
They are actively enrolling families who coordinate care of an older adult over the age of 75 . This study will evaluate the extent to which InfoSAGEimproves the patient’s and family’s sense of awareness and control over long-term care plans as well as optimizes overall resource utilization in care transitions.
View the project’s introductory video:
Knowledge-Based Health Record (KBHR®)
With development led by DCI Chief Information Architect Dr. Henry Feldman and Director of International Projects Eli Kaldany, the DCI team has worked closely with the Dasman Diabetes Institute in Kuwait since 2009 to create an electronic health record that meets the needs of a full service, multi-specialty ambulatory diabetes clinic.
The EHR has many innovative features, including a full-scale multi-ontology problem library, the use of visualizations of data for trend analysis, full-scale note searching, and a graphical exam module to speed documentation by specialists and enhance note readability. The EHR also interfaces with PACS and lab systems, and has an electronic pharmacy management system.
KBHR is a critical part of both daily care at DDI and the pursuit of the Institute’s mission “To prevent, control and mitigate the impact of diabetes and related conditions in Kuwait through effective programs of research, training, education, and health promotion and thereby improve quality of life in the population.” DCI has been proud to be a part of many innovative research studies, papers and novel analysis of clinical data to improve patient outcomes.
Platforms for Clinical Collaborations and Coordination of Care
Yuri Quintana’s research is focused on developing innovative technologies that empower communities of healthcare professionals and patients to collaborate on a worldwide basis. This work focuses on the design and evaluation of collaborative clinical systems in diverse international settings to help support the coordinate care of healthcare services. The development of these collaborative care platforms are being used to investigate what factors can promote and sustain online communities of healthcare providers and patients.
A platform is being designed so it can be used for training and care communication between health professionals and patients. The system is being designed to have seamless data interchange between the learning system, collaboration system, consultation system, and clinical data repository. The system is not disease specific so it can be adapted for use in other conditions and diseases such as cancer, diabetes and mental health, and coordination of care of elderly. The first implementation of the system will be used to connect women, midwives, pediatricians and other care providers in a mobile phone enabled network.
The system will be used to train health professionals (pediatricians, neonatologists, nurses, mid-wives). The collaboration tools will be used to create online communities of practice for health professionals. The consultation system will be used by pediatricians to connect to a center of excellence at a University hospital for advice difficult pregnancies. The collaboration tools will also be used to create online peer support groups for pregnant women and new mothers. Women will be able to ask questions of their midwives or pediatrician via the mobile phone app.
Future work will examine how to link public health systems, community outreach systems, clinical systems and home care systems, to create larger coordinated care communities, and to facilitate the collection of data from multiple stakeholders to create data repositories for translational research.